An Update on My Current Life
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I figured it was time for an update. A lot of people don’t know what has been going on in our lives and it has been a very stressful time for us lately. It all started a few weeks before Christmas when my husband almost collapsed during a PT test. He couldn’t breathe and was having a really hard time so they sent him to his doctor. Come to find out my husband had been having shortness of breath and chest pain for months and had not told anyone.
He got an EKG and an x-ray done and they told him that the EKG came back abnormal and that one side of his heart was enlarged. He was sent to a cardiologist and a pulmonary specialist and they ran all kinds of tests. The heart tests all came back fine so he was sent back to the pulmonary specialist who told him it was probably asthma (possibly allergy-induced) and if not that then it was probably due to stress.
My husband gets a test to find out for sure if it is asthma or not at the end of the month and then we will know more, but until then our life has felt like it is on hold. We do not know if he will get medically discharged, or be able to deploy this summer like he was supposed to be. We have heard there are ways around it, but it all depends on what is causing the asthma. He will still have to go before a medical board to get a waiver if they allow him to stay in and if that is not finished in time then he will not deploy.
It’s hard waiting. It’s hard not knowing. It’s hard when God is trying to teach me patience in His sovereign will.
Meanwhile our plans that not many people know about have been put on hold. We have been trying to start the process of requesting a medical move with the military for my son to get better care. All of that has been put on hold until we know what is going on with my husband’s health and his deployment.
We also have started the process of finding out what school my son will go to. Because he is Autistic and has other special needs he will go to school to a special needs program at the age of 3. Because he turns 3 in June and school will be out for the summer; all of the decisions, meetings, and paperwork need to be done way before that.
We also found that because we live on a military base that we have to go to the school zoned for that base. The school we are zoned for is known for being a horrible school and I have had friends move off the base just to avoid having their kids go to that school. We are looking into it more before we make any rash decisions, but if we can’t request a change or a different school we will be moving off the base to another area before August.
With this school thing I have been introduced to whole new world. A world of school zones, IEP’s (Individualized Education Plan) for special needs children, and more. I am lost as I did not go to public school and do not know anything about it, not to mention the fact that it is totally different for a special needs child.
People ask why don’t we just homeschool, but they don’t understand. Once his turns three a lot of his therapy is going to go through the school system. Tricare will not pay for it if the school covers it for free. We have already considered all our options and we feel homeschooling is not for us at this time and that Adam would do best in a special needs environment around other kids and around teachers and therapists who know how to help him much better than I could.
We also just found out yesterday that my husband’s car is overheating and with tax it’s going to cost about $1,300. I feel like it never ends. On a better note Adam is doing well in many areas and improving greatly. He is trying to sound out more words best he can, he is doing well trying new foods in therapy, but right now our huge struggle is getting him to eat them at home too. He will only do it for the feeding therapist and reverts back to eating only two foods when he is at home.
He has been sick a lot and has had a lot of ear infections so we are going to be meeting with the ENT again to talk about getting tubes in his ears for the second time. We have also started working on some potty training with him. He has learned to sign to us to tell us when he has a dirty diaper and we have sat him on the potty a few times to get used to it.
Life is busy as usual, but trying to hard to remain thankful for my many blessings. We covet your prayers during this time!
praying for you <3
as you know 😉
Thank you dear, I appreciate it!
Wow…even knowing most of this already I just feel so overwhelmed for you. Having to possibly move on top of everything else you are going through…wow. just wow. I wish I had words of wisdom for you or some way to help but I’m coming up empty. Hugs and prayers to you!
Thanks Aprille, I appreciate it. Just praying for the Lord’s will in all of this. I hate the waiting period… lol.
Can he just go to the school for the therapies, without being enrolled fulltime? My son took speech therapy at “that” school and we really liked the teacher. We had to go through the IEP process and fill out enrollment paperwork, but I took him up to the school 2 times a week for 30 minutes of speech and just waited for him.
I am not sure. It might be possible, but we feel right now it’s just best if he attends there. At least for the time being.
I will keep you all in my prayers. As an FYI Tricare will pay for SLP, OT and ABA even if you are getting services through the school system. We have used both school and private at the same time. I have also found that at times the private services gave the child in mind rather then the red tape of school funding. God bless you and show you His ways! Schooling has been the most frustrating part of being a mom of a beautiful ASD boy, don’t hesitate to ask for help or talk to an advocate if you need to! In prayer!
Hmm I was told the opposite that Tricare would stop paying for them. Maybe I need to look into it more then… Thank you for the help I appreciate it! Yes, we are praying hard for God’s direction in all this, and I am confident that He has a plan and will show us the way. I appreciate your help and encouragement thank you SO much!
Praying. Thank you for sharing, your update is a gift to us all because it shows how we can join together. Knowing that as we gather together all over the world that God is meeting us and building bridges and bounds we can not see. Lord please give this family your wisdom. Let the Doctors be guided by your knowledge of your childrens bodies. May there be peace felt in a time of unknowns. Lord in all of this may joy and memories be seen and rejoiced in. Thank you again.
Thank you so much for this Kristin, it really touched my heart in a special way.
One mini miracle to focus on during your struggles is that your husbands heart is fine. I have asthma…life goes on. Focus on that, and sending prayers your way.
Yes, and that is something I did not mention in my blog post and I am sorry for that. We were both SO relieved to find it was not his heart and I prayed and thanked God so many times after we found out for sure. Yes, asthma is not a big deal, we know that, but it is to the military and the fact that he may be our of a job because of it within the next year is scary. Thanks for the prayers!
Praying for your dear friend! Everything will be ok.
Thank you so much, you don’t know how much it means to us!!
Hang in there girl. For whatever reason, these trials are in your path at the moment…just know that God is with you and will pull you through!
Thank you so much Anita, you are so right!
I’m so in awe of strong you are. Its so difficult to rejoice in the tough times. Praying that you are able to have peace in this trying time. Patience is hard. Praying praying praying!
People say that, but I don’t feel strong. Only through God’s strength do I keep going sometimes. Thanks for the prayers and encouragement, I appreciate it so much.
P.S. I visited your blog and I thought it was SUPER cute! 🙂
Just curious if you or your husband has been in to talk to your First Sergeant about your situation. A good First Sergeant should be able to help you with options, or get you plugged into some of the right base agencies.
This is coming from a former squadron commander with 26 years (so far) in the Air Force. Also a fellow blogger. 🙂
Sadly, my husband’s squadron has gone through way too many 1st Sgts. We are plugged in with a lady from Family Advocacy on base and she has been very very helpful to us. Thank so much for stopping by and for commenting!