One of life’s most important questions for a mom with a child on a feeding tube is how to keep the formula cold all night long while the child is sleeping. Some moms have to refill the bag several times a night. Some use an ice pack that may or may not work, but can…
Feeding Disorders
Tips for Families Traveling With a Tube-Fed Child
Most families like to travel. They want to see the world, visit family, and go on vacation. But what if you’re a special needs family? What if you have a tube-fed child? It may be more difficult to travel due to how expensive it is and because of all the medical equipment you would have to…
My Child has a G-Tube: A Day in the Life
This week is feeding tube awareness week. I have written a few times about my daughter’s G-Tube, but this month being her third year having it, I wanted to write about it some more and hopefully bring more awareness to what a feeding tube is and why it’s so important. I’m bringing more awareness to #feedingtubes…
Special Needs: Why a Feeding Tube?
When I was thinking about the title of this post, I wasn’t sure the term, “special needs” fit the bill. My daughter was developmentally behind, but now she is thriving and a very smart girl! The term “special needs” doesn’t just mean that someone mentally requires assistance, it can also refer to medical assistance as…
Join the Online Jamberry Fundraiser For Our Family
A few weeks ago, a friend of mine asked me if she could do a Jamberry fundraiser for my family. If you have been following along for the past year or so, you know that my daughter was hospitalized 7 times last year and it’s been quite a rough time for us. Between my daughter’s…
Easy Ways to Help Your Child Eat More Food
As a mother to two special needs kids with feeding disorders, I have learned a lot of ways to help my kids eat more of a variety of foods. Sometimes the ways are tiny and small, but they do work, and so I thought I would share them with you! Whether you have a child…
Dear Mom of a New Tubie
Dear Mom of a New Tubie, I feel how scared you are. So many questions running through your mind. Take a deep breath. Just breathe. I know there have been a lot of new words and abbreviations thrown out there lately… NG, NJ, G-tube, GJ, peg tube, and more. It all seems so overwhelming. There are…
Question From a Feeding Therapist: How do I Help When Parents Won’t?
Last month I received an email from a feeding therapist asking me for advice about one of the patients she provides feeding therapy for. I was both surprised and unsurprised by this question. Easy Ways to Help Your Child Eat More Food At first, I was surprised that I was being asked because I’m not…
What it’s Like to be a Mom to a Tubie
First of all, what is a “tubie”? A “tubie” is a child who is fed through a feeding tube. And there are several different types of feeding tubes that a tubie could have: NG tube – Runs from nose to stomach. NJ tube – Runs from nose to intestines. G-tube – Surgically placed in the…
Tips for Children with Feeding Disorders
I wrote a post a little over a year ago about Adam’s feeding therapy, what we did there, and how they tried to help him. Today, I thought I would write a post about tips for other moms and dads who may be struggling with children who also have feeding disorders. zest_marina | dollarphotoclub.com Not…
