For medically complex kids, especially those that spend a lot of time in and out of hospitals, small things like free hospital gowns for a “stuffie” can be a BIG help! Kids hate spending time in hospitals and doctor’s offices, but there are plenty of things we can do to help them adjust to this…
Hospital Life
Parenting a Child Whose Second Home is the Hospital
When I dreamed about becoming a mom, I never once asked myself the question, “What if my child was chronically ill?” When we think about becoming parents we think in terms of healthy and whole. We hear, “We don’t care what gender the baby as long as he or she is healthy.” But what if…
12 Things You Need to Know When Your Child is in the Hospital
I have been wanting to write this post for a very long time. My daughter who is two years old has been in the hospital nine times (that’s the inpatient number, that doesn’t include the many emergency room visits) and many of these hospitals have been all over the country. She has been inpatient in two…
Preparing for Your Child’s Hospital Stay
Over the weekend, my daughter had another hospital stay. Thankfully, it wasn’t anything serious and just for observation, but I realized something: Elizabeth has been in the hospital for a total of 5 weeks in the short 9 months since she’s been born. The hospitalizations have been in three different hospitals in two different states, for a…
Back From Boston…
We our back from our medical trip to Boston and are glad to be home. We spent about a week up in Boston and although we did not find the answers we were looking for, it was one of the best things we ever did. The hospital and staff up there was amazing. We saw…
Our Medical Journey to Boston
You may have followed our journey with my daughter, Elizabeth and all of her health issues. She’s had three hospital stays in her 7 months that she’s been alive and now we are leaving tomorrow to go to Boston. The doctors here are at a loss of what else to do, so we are taking…
Fighting for Answers
I never did have a chance to update with what life as a mom to a baby with a G-tube was like, before our lives were in another whirlwind mess again. We had almost two full weeks at home after two weeks in the hospital with my baby girl, and it was definitely interesting trying…
Becoming a Special Needs Mom All Over Again (an update)
This is a guest post written by my friend, Aprille from Beautiful in His Time. She’s sharing an update on our situation from her perspective as my friend. She tells me words I can’t pronounce. She already has one child with special-needs. He needs therapies and extra attention, and now her three-month-old daughter is showing…
Hospital Living
For the past week I have only been home once. I have been living in the hospital and partially at the Ronald McDonald House nearby. Hospital living is not what I expected. Of course no one wants to have to stay at a hospital, but looking back I thought that getting the help we needed…
