Earlier this year, during the kids’ Spring Break, we decided to get out of the house and go see something local. After looking at my bucket list and seeing what wasn’t too far and also do-able on such short notice, I contacted my friend and asked if she and her kids wanted to go see…
When People Tell You to Stop Looking for a Diagnosis
On February 23rd, 2017, after three years of looking for a diagnosis, my daughter Elizabeth finally received not one, but three main diagnoses from a local geneticist. For me, it was not a shock. I knew there was a diagnosis out there that fit her and I was not afraid to continue searching in spite…
Learning to Write Again
A lot can happen in a year… It’s been a little over a year since I have written something new here on the blog. At first, it was because I was just so busy. Then it was because I started a new job at New Summit Charter Academy and I loved it just as much…
Poke Cake With Coconut Cream Cheese Frosting
What is a poke cake? A poke cake is exactly that, a cake that’s been poked. Red Velvet Dream Cake With Chocolate Chip Cream Cheese Filling Poke cakes were initially popularized in the 1970’s through a Jell-O ad. Since then, the poke cake has always claimed a spot in home kitchens. Bakers have been re-inventing…
“Get to Know My Special Needs Child” School Printable
School is just around the corner for most of us and while it can be an exciting time, it can also be a bit anxiety-inducing for parents of special needs kids. We all want our child’s teacher to understand our child and to know all the little details that make them unique, but sometimes it…
Ultimate Colorado Bucket List
My family has lived in Colorado for over three years now and our Colorado Bucket List has only gotten larger over the years. Colorado is a beautiful place and there so many things to see and do in Colorado Springs as well as all over the state. While we have not visited everything on this…
Does One’s Special Needs Justify Killing or Withholding Treatment?
The Alfie Evans case is not the first case of its kind to draw attention, but it does show us just how depraved humanity can be. In many circles, there are discussions about when life officially starts and ends. There are discussions about abortion, end-of-life care, physician-assisted suicide, euthanasia and if one’s special needs justify…
Can Autism be Cured or Can a Child “Lose” an Autism Diagnosis?
I was talking with a friend the other day and since I have two kids with autism, she asked me this question: You’re much more familiar with autism than I am so please tell me if I’m totally wrong, but I’ve got a friend telling me how you can basically cure autism with early intervention…
Top Pediatric Doctors for EDS, Dysautonomia, and Mast Cell Disorders
With my new series on Ehlers-Danlos and “The Trifecta” (Dysautonomia, POTS, Mast Cell Disorders), I have already been getting many questions about the pediatric doctors we see for these disorders. Since we are a military family, we have traveled to other states and seen other pediatric doctors that I would highly recommend. While most of…
An Introduction to Ehlers-Danlos Syndrome in Children
It’s been exactly one year since my daughter received three official diagnoses of Ehlers-Danlos Syndrome Type 3, Dysautonomia (POTS), and Mastocytosis/Mast Cell Activation Disorder. When you have all three of these together, they call it “The Trifecta.” Of course, you can have each one separately without the other, but more commonly you have at least two…
